Tag Archives: Centro Nazionale Malattie Rare dell’Istituto Superiore di Sanità

Malattie rare. Taruscio (Iss): “Scienza partecipata, un’occasione di civiltà”

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Un progetto che ha anche l’ambizione di cambiare quella mentalità dei silos nella scienza, che spesso limita i ricercatori e le ricercatrici in un determinato settore, laddove, invece, la Scienza partecipata richiede una continua interazione e scambio con altri settori. Per di più questo progetto intende coinvolgere anche persone che vivono sulla propria pelle o su quella dei propri cari difficoltà che li portano ad agire in prima persona nel tentativo di risolverle. Continue reading

Medicina Narrativa: progetto dell’Istituto Superiore di Sanità per valutare diffusione ed efficacia delle Linee di indirizzo

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Verificare l’effettiva diffusione e il corretto utilizzo delle Linee di indirizzo per l’utilizzo della Medicina Narrativa in ambito clinico-assistenziale, per le malattie rare e cronico-degenerative. È questo l’obiettivo del nuovo progetto targato ISS, a distanza di cinque anni dalla pubblicazione delle Linee Guida, promosso e coordinato dal Centro Nazionale Malattie Rare. Anche il Center for Digital Health Humanities nel comitato coordinatore.

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