Scienza Partecipata: online i primi progetti per migliorare la qualità di vita delle persone con malattie rare

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Le buone pratiche rappresentano una risorsa importante per sopperire la mancanza di disponibilità. Nel caso delle malattie rare, possono divenire determinanti nella messa a punto di soluzioni e strumenti utili ad agevolare la vita quotidiana.

Per questo, l’Istituto Superiore di Sanità e il Ministero della Salute hanno lanciato il BandoScienza partecipata per il miglioramento della qualità di vita delle persone con malattie rare.

Il progetto, coordinato dal Centro Nazionale Malattie Rare (CNMR), è rivolto a cittadini, scuole, associazioni, ricercatori e istituzioni, per contribuire tutti insieme a migliorare la vita delle persone e delle loro famiglie, attraverso la proposta e la condivisione di strumenti, idee ed esperienze.

Le prime idee e proposte concrete, utili per affrontare le piccole e grandi difficoltà delle sfide quotidiane che si trova a dover affrontare una persona con malattia rara (circa 2 milioni di persone in Italia, di cui il 70% in età pediatrica) sono già online (Progetti | #rarinsieme ( e verranno presentati direttamente dagli autori mercoledì 23 novembre dalle 18 alle 19.30 in un webinar dedicato.

Info e prenotazioni: Progetto Scienza Partecipata

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