Scienza Partecipata: per il miglioramento della qualità di vita delle persone con malattie rare

No Comments 173 Views0

Venerdì 15 luglio, a partire dalle 10.30, webinar “Scienza Partecipata: per il miglioramento della qualità di vita delle persone con malattie rare”. Con questo evento viene formalmente lanciato il progetto di Scienza partecipata, dedicato al miglioramento della qualità di vita delle persone con malattie rare, attraverso la raccolta e la condivisione di idee, soluzioni, tecnologie o strategie per affrontare piccole e grandi difficoltà e sfide di ogni giorno.

Aprirà i lavori il Presidente dell’ISS Silvio Brusaferro. Interverranno, tra gli altri: Domenica Taruscio, (Direttore del Centro Nazionale Malattie Rare), Annalisa Scopinaro (Presidente di UNIAMO, Federazione Italiana Malattie Rare), Tiziana Nicoletti (Responsabile Coordinamento nazionale delle Associazioni dei Malati Cronici e rari – CnAMC), Marta De Santis (Ricercatrice Centro Nazionale Malattie Rare, Istituto Superiore di Sanità), Vincenzo Pallotta (Presidente Associazione Malattie Rare dell’Alta Murgia – A.Ma.R.A.M.), Orfeo Mazzella (Presidente delle Associazioni Malattie Rare Forum Campano). Moderano l’evento Domenico Taruscio e la giornalista Daniela De Vecchis (Ufficio Stampa ISS).

Link per registrarsi all’evento:

Il Meeting, in streaming su Zoom, sarà anche in diretta sulla pagina Facebook del Telefono Verde Malattie Rare, Istituto Superiore di Sanità:


Elliott, The Dallas fresh, Found the going tough until late in to fourth quarter. Well later, The NFL leading rusher with the non-stop churning legs buried Pittsburgh. His first landing, A 14 yard dash down the best sideline, This Cowboys up 29 24 Kwon Alexander jersey. Patriots coach Bill Belichick said all three players would be assessed, But chiefly referred to Mayo injury as little bittersweet. Brady is two 300 yard passing games shy of complementing Brett Favre total. It has also been Brady 16th career game with four or more touchdowns and no interceptions. Provide much more competitive than it was out there, Belichick thought. Give to them credit, They did a bit more than we did tonight. We got to do a more satisfactory job, But I not implementing anything away from them reggie nelson jersey. A sixth year NFC snug end, Granted anonymity in order to speak freely regarding the subject, Said that short arming passes or seeking safe haven out of bounds to reduce contact happens the time and someone says they lying. Vikings attacking lineman Jeremiah Sirles calls it smart football. The person in Year 8 or 9, And you running down the part time, But(Seattle Seahawks cover) Kam Chancellor racing at you, What those extra 2 yards investing in a just stepping out of bounds and avoiding a huge collision? Sirles stated.I explain to you this I a black man, As well as, You are sure that, Colin Kaepernick, He not schokohrrutige, Okay? Harrison understood. Cannot determine what I face and what other young black men and black people face or people of color face on an every single[day] Agreement rashad jennings jersey. Birth sister is white, And he was applied and raised by white parents.. I felt it would definitely be a public safety issue we would cancel it, But at this moment I think we be fine for tomorrow custom chiefs jersey. You about to attend the parade, Mayor Walsh said to leave early and have plenty of travel time. Law enforcement will be enforcing this rule devante parker jersey..